Compassion & Choices:
The Fight for Choice at the End of Life
January 1, 2005: Compassion & Choices is formed by unifying Compassion in Dying and End-of-Life Choices.
The roots of Compassion & Choices spring from the experience, courage and success of its predecessor organizations. These two formidable organizations each played pivotal roles in laying the foundation during the formative years of the choice-in-dying movement. A new entity, one that could draw upon the strengths of each organization, was needed to navigate the rigorous journey ahead. The call to action has been sounded; Compassion & Choices is poised to move forward bringing with us our heritage, commitment and courage.
We are
Active in legislatures and courts to reform laws that limit a patient’s rights to excellent end-of-life care and personal control
Active in representing the interests of patients at the U.S. Supreme Court
Over 50,000 members and donors strong throughout the United States
Active in communities with more than 50 chapters, community groups and affiliates.
Our Legacy
The chronology of the choice-in-dying movement in the United States can be traced back as far as the early 1900s. The movement made major strides throughout the 1990s, which ultimately led to significant changes at the bedside, in the courtroom and in state and federal government. A diverse group of people, some acting together, and many working individually, wrote books, gave speeches, advocated for new laws, and assisted friends and family members in finding their way through wrenching end-of-life decisions.
MILESTONES in the Modern Choice In Dying Movement
| 1980 |
The Hemlock Society is founded, an end-of-life care organization for those suffering with incurable illnesses. |
| 1990 |
The US Supreme Court decides the Cruzan vs. Director, Missouri Department of Health case, ruling that Missouri was right in not allowing this young woman in a persistent vegetative state to die, because of a lack of clear and convincing evidence, but affirming the right of Americans to refuse unwanted medical treatment, and their right to appoint a health care proxy to speak for them when they could not. Cruzan was later allowed to die. |
| 1991 |
Coincidental with the first vote ever taken on aid in dying in Washington State, Derek Humphry, founder of the Hemlock Society publishes the first edition of Final Exit: The Practicalities of Self-Deliverance and Assisted Suicide for the Dying.
Oregon Senator Frank Roberts sponsors legislation championing choice at the end of life. |
| 1993 |
Compassion In Dying is founded to provide support and advocacy programs for the terminally ill in Washington State.
The Hemlock Society establishes the Patients’ Rights Organization, a political action group.
Compassion in Dying files Glucksberg v. Washington in federal district court, seeking recognition that the choice of a mentally competent, terminally ill patient to seek medications for a peaceful death is protected by the U.S. Constitution. |
| 1994 |
Oregon voters approve Measure 16, the Oregon Death with Dignity Act, a ballot initiative that permits terminally ill patients, under proper safeguards, to obtain a physician’s prescription to end life in a humane and dignified manner. The law passes with 51 percent of the vote.
Compassion in Dying files Quill v. New York in federal district court, seeking recognition that the choice of a mentally competent, terminally ill patient to seek medications for a peaceful death is protected by the U.S. Constitution. |
| 1996 |
The Ninth Circuit Court of Appeals and the Second Circuit Court of Appeals both find that the choice of a competent terminally ill patient to seek medications for a peaceful death is protected by the U.S. Constitution. |
| 1997 |
The Compassion In Dying Federation is spawned by Compassion In Dying of Washington, to launch national advocacy and support programs.
Oregon’s Death With Dignity Act is challenged by the National Right-to-Life Committee. The challenge was held up in the courts until it was dismissed by the Ninth Circuit Court in 1997. That year, the Oregon legislature put a measure on the ballot to rescind the law, but it was defeated by 60 percent of the voters.
In Washington v. Glucksberg and Vacco v. Quill, the U.S. Supreme Court declines to find federal constitutional protection for the choice of aid in dying, reserving the possibility that it will do so in a future case, and inviting the States to grapple with the issue. The Court does recognize a federal constitutional right of all dying patients to receive adequate pain relief, including palliative sedation.
The Hemlock Society establishes the Caring Friends program to provide information and support to its members.
Compassion In Dying’s client “Helen” becomes the first person to take lethal medication.
Rep. Henry Hyde and Sen. Don Nickles introduce The Lethal Drug Abuse Prevention Act to prohibit legal aid in dying. Compassion in Dying takes a lead in opposing the bill. |
| 1999 |
The US House of Representatives passes the Pain Relief Promotion Act (PRPA). Compassion in Dying takes a lead in opposing the bill. The bill would have criminalized aid in dying and nullified the Oregon law. |
| 2000 |
Oregon Sen. Ron Wyden’s threatened filibuster keeps the PRPA from reaching the Senate floor. |
| 2000 |
The Hemlock Society hosts the biannual conference of the World Federation of Right to Die Societies in Boston. |
| 2001 |
Attorney General John Ashcroft issues a directive that would effectively overturn two statewide elections and nullify the votes of over 650,000 Oregonians. Compassion in Dying files suit challenging the Ashcroft Directive on behalf of terminally ill Oregonians. Federal District Court Judge Robert E. Jones enjoins the Ashcroft directive. |
| 2001 |
Compassion in Dying takes the first-ever case alleging under-treatment of pain is elder abuse to court. Physician is held responsible and a jury awards $1.5M to the patient's survivors.
Compassion in Dying drafts and helps pass legislation in California (AB 487) to improve pain management at the end of life. |
| 2002 |
October 6, marks the fifth anniversary of Oregon’s Death with Dignity law; 129 terminally ill Oregonians have used it to die peacefully.
Attorneys present oral arguments for Oregon v. Ashcroft arguing states rights. Months later, Judge Jones rules against Ashcroft and rebukes the federal government for its attempt to "stifle an ongoing, earnest and profound debate in the various states concerning physician-assisted suicide." |
| 2003 |
A physician aid in dying measure is brought to vote in the Vermont legislature with the Hemlock Society providing assistance.
The Hemlock Society, after surveying its membership and receiving a resounding affirmative, enhances its mission to include a more proactive effort in introducing and changing laws that allow people the right to choose a peaceful hastened death if they are terminally ill and mentally competent. As a result of this, the board of directors, after due diligence, made the difficult but strategic decision to change its name from the Hemlock Society to End-of-Life Choices.
End of Life Choices hosts their biannual conference in San Diego, with Episcopalian Bishop John Shelby Spong as keynote speaker. |
| 2004 |
Compassion in Dying brings a case to the California Medical Board seeking redress for a physician’s failure to treat pain adequately, resulting in the first such disciplinary action.
The Department of Justice appeals Oregon v Ashcroft to the United States Ninth Circuit Court
As Attorney General John Ashcroft resigns, he files an appeal to the U.S. Supreme Court to review the Ninth Circuit’s affirmation of lower court injunction of the Ashcroft directive. Now known as Gonzales vs. Oregon, the case asks the high court to consider whether the federal Controlled Substances Act authorizes the Department of Justice to displace state regulators and determine legitimate use of medications. Traditionally, this prerogative has been reserved for the states. |
| 2005 |
Compassion in Dying and End-of-Life Choices unify to become Compassion & Choices. The new organization maintains headquarters in both Denver and Portland, and is the largest organization in the United States advocating for patients’ rights at the end of life. |
| 2006 |
On January 17, the Oregon Death with Dignity Act survives the Bush administration’s attempt to nullify it in a 6-3 U.S. Supreme Court ruling. In Gonzales v. Oregon, the Court held that the attorney general does not have the authority to cause a “radical shift” in the balance of state and federal power. Compassion & Choices represented 16 terminally ill patient-plaintiffs in the case.
Compassion & Choices urges the Oregon Department of Human Services (DHS) to cease referring to actions taken in accordance with the Oregon Death with Dignity Act as "assisted suicide.” DHS adopts a policy to use value-neutral language.
Compassion & Choices presents a policy resolution to the American Public Health Association (APHA), seeking recognition that the choice of a terminally ill patient to choose aid in dying is not "suicide.”
APHA adopts a policy urging health educators, policy makers, journalists and health care providers to recognize that the choice of a mentally competent, terminally ill patient to self-administer medications to bring about a peaceful death is not “suicide,” nor is the prescribing of such medications by a physician “assisted suicide” and recommending accurate, value-neutral terms such as “aid in dying” or “patient directed dying” be used to describe this choice. |
Our Future:
Unification: Compassion & Choices
With its January 2005 unification, Compassion & Choices now represents many thousand of dedicated supporters, and a steadily growing number of local groups throughout the country. Today, Compassion & Choices is the largest and most comprehensive end-of-life advocacy organization in the country.
Compassion & Choices’ mission is built upon three main pillars of service: client services, legislative advocacy and education. Compassion & Choices is committed to providing accurate information on end-of-life issues to the general public, to health care and legal professionals, to lawmakers, and to the media.
Compassion and Choices’ vision: a society where everyone receives state-of-the-art care at the end of life, and a full range of choices for dying in comfort, dignity and control.
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