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	<title>Compassion &#38; Choices &#187; ABC News</title>
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	<description>End-of-Life Choice, Palliative Care and Counseling</description>
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		<title>The Conversation Project&#8217; Shifts to End-of-Life Care</title>
		<link>http://www.compassionandchoices.org/2012/08/20/the-conversation-project-shifts-to-end-of-life-care/</link>
		<comments>http://www.compassionandchoices.org/2012/08/20/the-conversation-project-shifts-to-end-of-life-care/#comments</comments>
		<pubDate>Mon, 20 Aug 2012 11:26:35 +0000</pubDate>
		<dc:creator>Jay</dc:creator>
				<category><![CDATA[Aid in Dying]]></category>
		<category><![CDATA[All News]]></category>
		<category><![CDATA[ABC News]]></category>
		<category><![CDATA[The Conversation Project]]></category>

		<guid isPermaLink="false">http://www.compassionandchoices.org/?p=4728</guid>
		<description><![CDATA[By Maggy Patrick ABC News August 15, 2012 After her mother died in May 2012, magazine publisher Nadine Epstein and her son traveled to Deal, N.J., to have a conversation with her father about his end-of-life care. Epstein, 55, and some of her family members disagreed on what their mother would have wanted at the<span style="white-space:nowrap;">... <a href="http://www.compassionandchoices.org/2012/08/20/the-conversation-project-shifts-to-end-of-life-care/" class="bn">more</a></span>]]></description>
			<content:encoded><![CDATA[<p>By Maggy Patrick<br />
<a href="http://abcnews.go.com/Health/conversation-project-shifts-end-life-care/story?id=17001575#.UDJ9QKC2yZQ">ABC News</a><br />
August 15, 2012</p>
<p>After her mother died in May 2012, magazine publisher Nadine Epstein and her son traveled to Deal, N.J., to have a conversation with her father about his end-of-life care.</p>
<p>Epstein, 55, and some of her family members disagreed on what their mother would have wanted at the time of her death, mostly because they each had a different impression of her wishes. Epstein wanted to have a different experience with her dad.</p>
<p>&#8220;It wasn&#8217;t always easy not knowing exactly what mom wanted, especially throughout her last days,&#8221; said Epstein, publisher of Washington, D.C.-based Moment magazine.&#8221;There were definitely disagreements among the children, about what she wanted &#8230;</p>
<p>&#8220;As a group we all figured it out as best we could. But I would say we muddled through it. It would have been lovely not to have muddled through it, and I would love not to muddle through it in the future.&#8221;</p>
<p>&#8220;<a href="http://theconversationproject.org/">The Conversation Project</a>,&#8221; in partnership with ABC News, is starting a national conversation with the modern U.S. family about what each of us wants toward the end of our years. &#8220;The Conversation&#8221; on ABC&#8217;s &#8220;World News with Diane Sawyer&#8221; is about preparing family members for an emotional journey beyond end-of-life directives and insurance policies. It&#8217;s estate planning for the soul.<span id="more-4728"></span></p>
<p>Esptein&#8217;s father, Seymour, a 91-year-old physicist, agreed to speak with his daughter and grandson Noah Phillips, 20, but had a different outlook on what would happen in his final days.</p>
<p>He was clear that he wanted his children to decide what they wanted to do in regards to his care and passing, down to the details of his funeral.</p>
<p>&#8220;I said that before, all that&#8217;s unimportant to me,&#8221; he said. &#8220;I remarked if they can use my organs, my body for someone else&#8217;s benefit, that&#8217;s fine with me.&#8221;</p>
<p>The elder Epstein said he planned to focus on living, and not on the details of his final days. &#8220;I want to take the burden off you,&#8221; he said. &#8220;I&#8217;ll do what I can.&#8221;</p>
<p>His daughter and grandson then had their own conversation about what they want for each other later on in life.</p>
<p>&#8220;So it&#8217;s going to happen in a long, long, long, long time, and we&#8217;re going to be totally different people by then,&#8221; Phillips said to his mother. &#8220;But I guess the main thing I want to know is, do you trust me to kind of know you well enough to know what you&#8217;d want?&#8221;</p>
<p>&#8220;I do,&#8221; she said. &#8220;I know I haven&#8217;t given this a lot of thought. I&#8217;ve given a lot of thought for you know, Mr. Bronson, I&#8217;ve given a lot of thought for my mom, I&#8217;m giving it and will give it a lot of thought and I&#8217;ve thought about it for grandpa, but I haven&#8217;t really thought all those things through. But I do trust you.&#8221;</p>
<p>After thinking about how to move forward, it hit Epstein: She wanted to stay alive for as long as she can take in all the life around her, and the pair came up with the &#8220;Harry Potter&#8221; gauge.</p>
<p>&#8220;Here&#8217;s the thing. If I can continue to read &#8216;Harry Potter,&#8217; or be read &#8216;Harry Potter,&#8217; by you or my grandchildren, and your wife, and I could continue to listen to &#8216;Harry Potter&#8217; on tape, and then the &#8216;Lord of the Rings,&#8217; and I can read all sorts of great fantasy novels, then you need to keep me alive,&#8221; she said. &#8220;But if I&#8217;m at the point where I no longer can absorb &#8216;Harry Potter,&#8217; then maybe you need to pull the plug.&#8221;</p>
<p>Phillips gave input into what he wants for his mother down the road, too.</p>
<p>&#8220;So what I would like for you, is I would like for you in this hypothetical distant future&#8230; I have a family and I have a whole community and, hopefully, that community has lots of overlap with your community already, and that kind of thing,&#8221; he said. &#8220;I would like for you to, basically, continue being a part, living with us.&#8221;</p>
<p>&#8220;Sounds great to me,&#8221; Epstein said.</p>
<p>After sorting a few things out, Epstein told her son that she is incredibly blessed. &#8220;I feel like you&#8217;re such a wonderful person and you have a really good sense of me, and we actually have a lot of shared values, and so I actually don&#8217;t worry about that at all,&#8221; she said.</p>
<p>&#8220;Well, I&#8217;ve been raised with, I think, really good values that are really about taking care of people, and sort of generosity, and that kind of thing,&#8221; Phillips said.</p>
<p>&#8220;Hopefully, you&#8217;ll be that same lovely, wonderful person later on,&#8221; Epstein said.</p>
<p>&#8220;Maybe I&#8217;ll have a lobotomy,&#8221; Phillips joked.</p>
<p>&#8220;No, you can&#8217;t have a lobotomy,&#8221; his mother said. &#8220;No lobotomies allowed.&#8221;</p>
<p>&#8220;OK, I&#8217;ll put that in my advanced directive,&#8221; he joked. &#8220;No lobotomies.&#8221;</p>
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