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	<title>Compassion &#38; Choices &#187; Florida</title>
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		<title>Palliative Care Deserves Physicians&#8217; Attention</title>
		<link>http://www.compassionandchoices.org/2012/07/20/palliative-care-deserves-physicians-attention/</link>
		<comments>http://www.compassionandchoices.org/2012/07/20/palliative-care-deserves-physicians-attention/#comments</comments>
		<pubDate>Fri, 20 Jul 2012 16:15:54 +0000</pubDate>
		<dc:creator>Jay</dc:creator>
				<category><![CDATA[Aid in Dying]]></category>
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		<guid isPermaLink="false">http://blog.compassionandchoices.org/?p=2814</guid>
		<description><![CDATA[By Joe Cantlupe HealthLeaders Media July 19, 2012 Do you know about palliative care, the comprehensive treatment for the very sick, but not for those who are dying? Some doctors do not. As a physician, do you feel it is a sign of &#8220;failure&#8221; on your part, when longtime patients have grown tired of treatments,<span style="white-space:nowrap;">... <a href="http://www.compassionandchoices.org/2012/07/20/palliative-care-deserves-physicians-attention/" class="bn">more</a></span>]]></description>
			<content:encoded><![CDATA[<p>By Joe Cantlupe<br />
<a href="http://www.healthleadersmedia.com/page-5/PHY-282505/Palliative-Care-Deserves-Physicians-Attention">HealthLeaders Media</a><br />
July 19, 2012</p>
<p>Do you know about palliative care, the  comprehensive treatment for the very sick, but not for those who are dying?</p>
<p>Some doctors do not.</p>
<p>As a physician, do you feel it is a sign of &#8220;failure&#8221;  on your part,  when longtime patients have grown tired of treatments, and simply  want  comfort as they approach end of life?</p>
<p>Some physicians think it is.</p>
<p>As the population ages, and hospitals prepare  to care for more  chronically ill patients, more physicians should get  acquainted with  palliative care, to not only to improve patient care, but as a  potent  cost-savings tool.</p>
<p>With palliative care, hospitals can avoid  needless tests and  procedures, in part, because patients no longer want them.  Palliative  care is the comprehensive treatment focused on pain, symptoms and   stress of serious illness, or even spiritual assistance for the very  sick. Some <a href="http://www.nytimes.com/2010/08/19/health/19care.html">studies</a> have  shown it can extend life.</p>
<p>Still, although not widely practiced, palliative  care is becoming part  of the discussion among healthcare leaders to improve care,  especially  for the elderly.  In May, a  panel of healthcare leaders met in Chicago  as part of a HealthLeaders Media <a href="http://www.healthleadersmedia.com/breakthroughs/281599/Strategic-Solutions-for-the-Readmissions-Challenge">Breakthroughs </a> session  that focused on improving readmission  rates for hospitalized cardiac  patients. The talks veered off into other topics,  among them palliative  care, as well as hospice, or end of life care.</p>
<p>&#8220;Obviously, it&#8217;s probably one of the most  complex topics we could  discuss,&#8221; said Greg Johnson, DO, chief medical officer  for Parkview  Health, Ft. Wayne, IN, during the panel discussion.  &#8221;I also think that  when we talk about end-of-life  care, we need to approach it with more  curiosity and information than with  judgment and direction,&#8221; Johnson  says.</p>
<p>Although  there were almost no palliative care programs in America a  decade ago, about  63% of hospitals with 50 or more beds have a  palliative care team, according to  the Center to Advance Palliative  Care. It is likely that palliative care is going  to expand, but it is  still largely misunderstood, even among physicians.</p>
<p>For those patients who are weary of dealing  with their pain, tired  of medical procedures, and who want to live their days  as fully as  possible, palliative care may be the answer. In cases of people  even  more seriously ill, and possibly closer to death, hospice may be the   correct treatment option. Too often, physicians don&#8217;t pose the question:   Patient, what do you want to do?</p>
<p>Bruce Robinson, MD, MPH, director of the  chief of geriatric medicine at  Sarasota Memorial Hospital in Florida told me  how, too often,  physicians may articulate their hopes for patients, even when  it&#8217;s a  terrible illusion.</p>
<p>&#8220;The patients want to keep that hope,&#8221; he  says. &#8220;The doctors want to  just do what they do and that&#8217;s how they make their  living, so they  are happy when a patient says, ‘I want you to do something. I  want to  pretend I&#8217;m not dying.&#8217; So stuff gets done.&#8221;</p>
<p>Other  physicians may not endorse palliative care, or even hospice  care, because they  wrongly feel those programs may reflect poorly on  their own work, healthcare  leaders tell me. Some doctors may see those  programs as symbolic that they have  given up hope, that all those  procedures, all the plans for their patients,  were for naught. That&#8217;s  too bad.</p>
<p>At the Breakthroughs session, panel member Johnson  raised the point  that physicians &#8220;feel like it&#8217;s a failure&#8221; to have such  discussions  involving palliative or end of life care. That shouldn&#8217;t be the  case,  he says. &#8220;We have to be willing to follow-up  what the patients&#8217; goals  are,&#8221; Johnson says.</p>
<p>&#8220;Because what I&#8217;ve seen too frequently is the patient will have stated   their goals of care and then somewhere that gets overwritten. And we see  the  94-year-old patient that didn&#8217;t&#8217; want anything who is on on a  ventilator for a  month. And that&#8217;s a very sad thing.&#8221;</p>
<p>The essential question for palliative care is &#8220;how do we manage  symptoms  so the patient can feel as good as possible, and have optimal  life experience?  The conversation in chronic care management goes a  long way,&#8221; said panel member  Kathleen Martin, RN, vice president of  patient safety and care improvement for  Griffin Hospital, Derby, CT.</p>
<p>While palliative care is increasing, its generally  poor name  recognition, among the public, as well as among healthcare workers,   including physicians, is a significant obstacle, Timothy E. Quill, MD, a   professor of Medicine, Psychiatry and Mental Humanities at the  University of  Rochester School of Medicine and Dentistry tells  HealthLeaders Media.</p>
<p>&#8220;Palliative care has a name recognition  issue,&#8221; Quill says. &#8220;About 20%  of the public may know what it is, but once  people and patients learn  what it is, their question becomes: ‘why didn&#8217;t I get  that earlier, why  isn&#8217;t that the care for all seriously ill people?&#8217; Hospice  care has a  higher name recognition, but it&#8217;s for people at the end of life,&#8221; he   says.</p>
<p>While there  is some uncertainty what exactly is palliative care,  some healthcare facilities  are offering both palliative and hospice  care programs, which they see as  crucial to improve care among the  elderly, and offering as many options to them  as well as their  families.</p>
<p>The Hospice  of the Valley, in San Jose, CA, is one of those  facilities that serves both  populations.  There is an increasing need   for mental health or community-based programs to assist the patients,  says Sally  Adelus, president/CEO of the Hospice of the Valley, told  HealthLeaders  Media.</p>
<p>Because the  scope of care is evolving for the elderly populations,  it&#8217;s important that  physicians work closely with families to consider  palliative or hospice care options.  The Sutter Health system, a network  of doctors and hospitals in northern  California, has an advanced  illness management program that partners with  patients and families to  better coordinate care for palliative patients and  also consider end of  life options, says Brad Stuart, MD, chief medical officer  at the  Sutter Care at Home in Fairfield, Calif.</p>
<p>Stuart says  it&#8217;s important that both disciplines (palliative and  hospice) &#8220;collaborate for  the best outcomes we can have.&#8221; Much of the  focus for improved patient care,  especially those in palliative care,  is moving toward &#8221; focusing on goals of  patients in their own lives.&#8221;</p>
<p>Even in the  hospice and palliative care world, however, there are  &#8220;turf&#8221; struggles, as in  many other areas of healthcare, he says. &#8220;We&#8217;re  trying to change the medical  culture. It&#8217;s an uphill battle,&#8221; Stuart  says.   Physicians gaining knowledge about such care is a start, he  adds.</p>
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		<title>Healthcare Equality a Must in American Hospitals</title>
		<link>http://www.compassionandchoices.org/2010/06/17/healthcare-equality-a-must-in-american-hospitals/</link>
		<comments>http://www.compassionandchoices.org/2010/06/17/healthcare-equality-a-must-in-american-hospitals/#comments</comments>
		<pubDate>Thu, 17 Jun 2010 17:54:01 +0000</pubDate>
		<dc:creator>Blaine</dc:creator>
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		<guid isPermaLink="false">http://compassionandchoices.org/blog/?p=1050</guid>
		<description><![CDATA[Posted on Wed, Jun. 16, 2010 BY JANICE LANGBEHN www.hrc.org What happened to me and my family is unimaginable for most people. In 2007, the person with whom I shared my life for 18 years was rushed to the emergency room with a brain aneurysm. Far from home on vacation with our children here in<span style="white-space:nowrap;">... <a href="http://www.compassionandchoices.org/2010/06/17/healthcare-equality-a-must-in-american-hospitals/" class="bn">more</a></span>]]></description>
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<div id="printButton"><a href="http://www.miamiherald.com/2010/06/16/1682790/healthcare-equality-a-must-in.html"><img src="http://media.miamiherald.com/images/redesign/mh_logo_print.gif" border="0" alt="The Miami Herald" /></a></div>
<p>Posted on Wed, Jun. 16, 2010</p>
<p>BY JANICE LANGBEHN<br />
www.hrc.org</p>
<p>What happened to me and my family is unimaginable for most people. In 2007, the person with whom I shared my life for 18 years was rushed to the emergency room with a brain aneurysm. Far from home on vacation with our children here in Florida, my partner was taken to Jackson Memorial Hospital, and I followed closely behind.</p>
<p>When I arrived shortly afterwards, I was told I couldn&#8217;t go to her side and instead paced around the lobby wondering about her condition. By the time they finally let me in hours later, it was with a priest as he performed last rites.</p>
<p>Dealing with any medical emergency is a nightmare, but because my partner Lisa and I were both women, some of our last moments together were robbed from us. I was told by an employee at Jackson that we happened to be in an &#8220;anti-gay city and state.&#8221;</p>
<p>The American healthcare system failed us. Even though I had power of attorney, JMH had no policies in place to explicitly protect lesbian, gay, bisexual and transgender (LGBT) patients and their families, and so I was treated as a stranger. The hospital still refuses to apologize.</p>
<p>My life changed that day, and not only because Lisa was gone. I realized I had a story to tell, not just about LGBT rights &#8212; but about the human right to decide who should be with you in sickness and in death.</p>
<p>Earlier this year I received a call from President Obama telling me that he wanted no other family to have to go through what we did. In a memo directing the secretary of the Department of Health and Human Services to protect the visitation and medical decision-making rights of LGBT people, he wrote, &#8220;There are few moments in our lives that call for greater compassion and companionship than when a loved one is admitted to the hospital.&#8221;</p>
<p>Luckily, the president was not alone in seeing the need for change. The Joint Commission, the agency that accredits and certifies healthcare facilities nationwide, recently announced new standards that require fully inclusive nondiscrimination policies. Taken together, these developments mean that LGBT patients and their families will have dramatic new protections for healthcare equality &#8212; in hospitals nationwide, from Florida to Alaska and everywhere in between.</p>
<p>And it&#8217;s a good thing, because my story is all too common. A new analysis of healthcare equality by the Human Rights Campaign (HRC) Foundation found that more than nine out of 10 U.S. healthcare facilities don&#8217;t have fully inclusive policies toward LGBT people. Out of the thousands of hospitals nationwide, just 11 individual facilities and one network of 36 hospitals reported providing comprehensive healthcare equality. And tragically, less than a third grant equal-visitation access for same-sex couples and same-sex parents through explicitly inclusive policies.</p>
<p>In Miami, the report found four healthcare facilities that don&#8217;t include &#8220;sexual orientation&#8221; or &#8220;gender identity&#8221; anywhere in their Patients&#8217; Bill of Rights or nondiscrimination policy: Baptist Hospital, Cedars Medical Center, Mount Sinai Medical Center and Brooks Rehabilitation Hospital.</p>
<p>Major healthcare providers are starting to understand change is coming, with meaningful results. Last week, Kaiser Permanente updated their Patients&#8217; Bill of Rights and visitation policies to fully protect LGBT patients and their families from discrimination. One of the nation&#8217;s largest not-for-profit health providers, Kaiser Permanente&#8217;s network of 36 hospitals and 430 medical offices has a fully inclusive nondiscrimination policy for LGBT patients effective June 1.</p>
<p>The work of the HRC Foundation and Kaiser Permanente should put healthcare facilities on notice: Move toward greater inclusiveness, sooner rather than later, because that&#8217;s where America is headed.</p>
<p><em>Janice Langbehn is the surviving partner of Lisa Pond and advocate for LGBT healthcare equality. She lives in Lacey, Wash.<br />
</em><br />
<strong><a href="http://www.miamiherald.com/2010/06/16/1682790/healthcare-equality-a-must-in.html">READ THE FULL STORY AT THE MIAMI HERALD &gt;&gt;</a></strong></div>
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