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	<title>Compassion &#38; Choices &#187; living wills</title>
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		<title>What Makes the End-of-Life Experience Peaceful?</title>
		<link>http://www.compassionandchoices.org/2012/07/11/what-makes-the-end-of-life-experience-peaceful/</link>
		<comments>http://www.compassionandchoices.org/2012/07/11/what-makes-the-end-of-life-experience-peaceful/#comments</comments>
		<pubDate>Wed, 11 Jul 2012 20:32:06 +0000</pubDate>
		<dc:creator>Jay</dc:creator>
				<category><![CDATA[Advance Directive]]></category>
		<category><![CDATA[Aid in Dying]]></category>
		<category><![CDATA[All News]]></category>
		<category><![CDATA[advance directives]]></category>
		<category><![CDATA[end of life]]></category>
		<category><![CDATA[health care decisions]]></category>
		<category><![CDATA[living wills]]></category>
		<category><![CDATA[peace in the end]]></category>
		<category><![CDATA[physicians]]></category>
		<category><![CDATA[terminally ill]]></category>

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		<description><![CDATA[By Jenifer Goodwin US News July 9, 2012 Dying patients face their final days better if they are not in the hospital, not on a feeding tube or chemotherapy and feel that they have a trusting relationship with their doctor, a new survey of terminally ill cancer patients reveals. Other factors that helped them find<span style="white-space:nowrap;">... <a href="http://www.compassionandchoices.org/2012/07/11/what-makes-the-end-of-life-experience-peaceful/" class="bn">more</a></span>]]></description>
			<content:encoded><![CDATA[<p>By Jenifer Goodwin<br />
<a href="http://health.usnews.com/health-news/news/articles/2012/07/09/what-makes-the-end-of-life-experience-peaceful?page=2">US News</a><br />
July 9, 2012</p>
<p>Dying patients face their final days better if they are not in the  hospital, not on a feeding tube or chemotherapy and feel that they have a  trusting relationship with their doctor, a new survey of terminally ill  cancer patients reveals.</p>
<p>Other factors that helped them find peace in the end, the  survey showed, were prayer, meditation,  a pastor&#8217;s visit and freedom  from excessive worry or anxiety.</p>
<p>The survey involved about 400  U.S. patients with advanced cancer who were told they had less than six  months to live, and their closest caregiver, usually a spouse. The  cancer patients, whose average age was 59, were surveyed an average of  four months before they died. Their caregivers were then surveyed about  the end-of-life experience.</p>
<p>Several factors determined how the  patients and their caregivers rated their  quality of life at the end.  Among the most important: not dying in the intensive care unit or  hospital; not having to endure aggressive, life-prolonging treatments at  the end, such as feeding tubes or chemotherapy; and feeling their  doctor saw them as a whole person and treated them with respect, said  lead study author Holly Prigerson, director of the Center for  Psychosocial Epidemiology and Outcomes Research at Dana-Farber Cancer  Institute in Boston.</p>
<p>&#8220;What the results suggest is that attention  to patients&#8217; psychosocial needs, their spiritual needs, their comfort,  their worries, their need to not be abandoned by their health care team  and to feel valuable and significant are the things that matter most to  the patients and their families,&#8221; Prigerson added.</p>
<p>&#8220;It&#8217;s not . . .  how much chemo or what procedures are performed or heroics. In fact,  it&#8217;s the opposite. It&#8217;s the human connection that seemed to be the most  important [for] good quality of end-of-life care,&#8221; she said.</p>
<p>The research was published online July 9 in the <em>Archives of Internal Medicine</em>.</p>
<p>Oncologists  tend to focus on curing patients, but many are less comfortable dealing  with end-of-life issues, the experts said. The findings show that even  when a cure is no longer possible, patients still want to know their  doctors care.</p>
<p>&#8220;When patients aren&#8217;t curable anymore, a lot of  physicians feel there is very little they have to offer their patients,  but what these results suggest is the opposite,&#8221; Prigerson said. &#8220;In  fact, physicians are one of the most important influences on the quality  of life of their patients &#8212; by being there, being emotional available,  being present and not emotionally abandoning someone because you can&#8217;t  cure them of their cancer.&#8221;</p>
<p>Alan Zonderman, a senior investigator  at the U.S. National Institute on Aging, said the study is important  because it includes actual data, rather than anecdotes, about what  matters to patients and their families at the end of life.</p>
<p>&#8220;It  means that we can give physicians some real guidance based on some  genuine evidence from patients and people who are truly close to the  patient,&#8221; said Zonderman, who was the co-author of an accompanying  editorial in the journal.</p>
<p>The findings also illustrate how  important it is for physicians who treat cancer patients to be able to  &#8220;shift gears&#8221; and focus on the quality of a patient&#8217;s last days when a  cure is no longer possible, said Dr. Michele  Evans, senior scientist  and deputy scientific director at the U.S. National Institute on Aging.</p>
<p>Having  that conversation isn&#8217;t easy, Evans added. &#8220;We&#8217;re good at telling  patients: &#8216;The nausea, the hair loss, the vomiting, it&#8217;s worth it,  because we are going to get you to a cure,&#8217;&#8221; Evans said. &#8220;But in the  course of some diseases, we are not going to get there.&#8221;</p>
<p>That&#8217;s  when it&#8217;s important for physicians to have a strong, open relationship  with patients, to be able to tell them the truth, and to be there going  forward, she added.</p>
<p>Another key finding was the importance  patients placed on &#8220;choosing where they were going to die and how they  would spend the last time available to them,&#8221;  Evans said.</p>
<p>&#8220;There  is no way to make an [intensive care unit] a pleasant environment,&#8221;  Evans said. If cancer patients are spending their last days there, &#8220;it  often means the care has gotten out of control, and is no longer based  on quality of life. It&#8217;s preservation of life at the cost of quality of  life,&#8221; she added.</p>
<p>To make sure those end-of-life needs are met, experts say cancer  patients should have documents such as advance directives, living wills  and durable power of attorney for health care, which appoints someone to  make health care decisions should you no longer be able to.</p>
<p>But  equally as important, Evans said, is for cancer patients to make sure  they discuss their wishes with their family and their physicians.</p>
<p>&#8220;It  first has to start with a conversation with your immediate family, and  you have to understand the dynamics of your family, so that when you may  be too ill to make decisions, that they understand how you would like  things to be done,&#8221; Evans said.</p>
<p>&#8220;So many times, we never had that  conversation. Families will say, &#8216;We don&#8217;t know what to do, just treat  him. He&#8217;s a fighter.&#8217; This person in life may be a fighter. But what  happens if we are going to lose the fight? Do you want to go down  fighting, or do you want to have time to feel not so bad and to have us  focus on the quality of your life?&#8221; Evans continued. &#8220;We as Americans,  we don&#8217;t have that conversation frequently enough, and we don&#8217;t have it  with our physicians.&#8221;</p>
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