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	<title>Compassion &#38; Choices &#187; Wisconsin</title>
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	<description>End-of-Life Choice, Palliative Care and Counseling</description>
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		<title>Making decisions for loved one&#8217;s final days</title>
		<link>http://www.compassionandchoices.org/2012/07/20/making-decisions-for-loved-ones-final-days/</link>
		<comments>http://www.compassionandchoices.org/2012/07/20/making-decisions-for-loved-ones-final-days/#comments</comments>
		<pubDate>Fri, 20 Jul 2012 16:36:32 +0000</pubDate>
		<dc:creator>Jay</dc:creator>
				<category><![CDATA[Advance Directive]]></category>
		<category><![CDATA[Aid in Dying]]></category>
		<category><![CDATA[All News]]></category>
		<category><![CDATA[end of life]]></category>
		<category><![CDATA[Honoring Choices]]></category>
		<category><![CDATA[Minnesota]]></category>
		<category><![CDATA[Wisconsin]]></category>

		<guid isPermaLink="false">http://blog.compassionandchoices.org/?p=2817</guid>
		<description><![CDATA[By Warren Wolfe Star Tribune July 19, 2012 Sue Schettle has spent the past three years coordinating an ambitious campaign to help Minnesotans make better end-of-life medical choices. As CEO of the Twin Cities Medical Society, she&#8217;s seen how often big decisions go wrong at difficult moments. Then she found out that her sister, who<span style="white-space:nowrap;">... <a href="http://www.compassionandchoices.org/2012/07/20/making-decisions-for-loved-ones-final-days/" class="bn">more</a></span>]]></description>
			<content:encoded><![CDATA[<p>By Warren Wolfe<br />
<a href="http://www.startribune.com/local/162973656.html?refer=y">Star Tribune</a><br />
July 19, 2012</p>
<p>Sue Schettle has spent the past three years coordinating an  ambitious campaign to help Minnesotans make better end-of-life medical  choices. As CEO of the Twin Cities Medical Society, she&#8217;s seen how often  big decisions go wrong at difficult moments.</p>
<p>Then she  found out that her sister, who almost died from complications of  emphysema 18 months ago, had made a big decision of her own: She had  designated Schettle to be her &#8220;health care agent&#8221; to decide on proper  care in case she is unable to speak for herself.</p>
<p>&#8220;This is  very different from talking with other people about the benefits of  planning for the end of life,&#8221; said Schettle, 47, as she visited her  sister, Pam Lyons. &#8220;This is real, and it&#8217;s personal.&#8221;<span id="more-2892"></span></p>
<p>It&#8217;s also a  sign of how Honoring Choices Minnesota, an effort of the Medical  Society and its foundation to encourage such discussions, is taking hold  across the Twin Cities and beyond.</p>
<p>The  campaign has enlisted doctors, hospitals, insurers and thousands of  patients in the Twin Cities, with fingers stretching to outstate  Minnesota and into Wisconsin. Now community and faith groups are joining  the effort, and the project has generated a five-part public television  series broadcast more than 70 times.</p>
<p>About 90  professionals leading the effort will gather Thursday in Minneapolis for  an annual meeting to gauge where they are and what remains to be done.</p>
<p>Honoring  Choices is based on a program begun 20 years ago in La Crosse, Wis.  Health professionals there had grown alarmed at the stress on families  when some dying patients were given intensive care that merely extended  the dying process &#8212; and sometimes put them in agony.</p>
<p>Studies  have found that most people enter their final days without instructions  to guide their care. For millions of Americans, that results in unwanted  tests, drug treatments and even operations at a time when they are too  sick to ask doctors to stop.</p>
<p>The new approach goes deeper than earlier strategies, such as living  wills or more generic advance-care directives, and encourages  discussions about death and dying. Trained facilitators help healthy  patients and families discuss the level of intervention they might want  in case of an accident, for instance. But for the sick and frail  patients, they help zero in on specific care choices they may soon face.</p>
<p>In a metro  area of 2.5 million people who come from many cultures and speak many  languages, the Minnesota program is believed the most ambitious and  sophisticated project of its kind in the nation.</p>
<p>&#8220;It was  always going to be a major project, but it&#8217;s become a rather amazing  community engagement strategy, a grass-roots effort,&#8221; Schettle said.  &#8220;Groups, cities, even other states hear about it and they start looking  for ways to participate or build their own systems.&#8221;</p>
<p>&#8216;At first, I was scared&#8217;</p>
<p>Although  she had been sick with emphysema for several years, Lyons, 59, had never  thought about filling out an advance directive until she was  hospitalized in December 2010.</p>
<p>&#8220;With  pneumonia on top of my emphysema, I almost died. They had to put in a  breathing tube,&#8221; said Lyons, who lives in Maplewood and who has three  grown children.</p>
<p>When a  hospital social worker asked whether she wanted to consider an Honoring  Choices health care directive, Lyons declined. &#8220;At first, I was scared.  It was like she was asking me how I wanted to die, and I did not want to  think about it,&#8221; Lyons said.</p>
<p>But a few  days later she called the social worker &#8212; among the 500 people in the  Twin Cities trained to help with such discussions &#8212; and started to  work.</p>
<p>The two sisters have talked several times about how Lyons wants care  to keep her comfortable &#8212; but not extend her life if she is dying. Each  time they go deeper.</p>
<p>&#8220;Now it&#8217;s  much easier to talk about these things, to joke about them even,&#8221; Lyons  said. &#8220;Like how I want all Elvis music at my funeral &#8212; except that&#8217;s  no joke.&#8221;</p>
<p>&#8220;When you can say these things out loud, you realize how important it is,&#8221; said Lyons, who uses a walker and oxygen.</p>
<p>&#8220;I&#8217;ve got a  really serious condition, and I don&#8217;t know when I&#8217;ll die. But I want to  make sure my kids or the doctors don&#8217;t have to guess what care I want.&#8221;</p>
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		<title>End-of-Life Care: A Portrait</title>
		<link>http://www.compassionandchoices.org/2011/07/06/end-of-life-care-a-portrait/</link>
		<comments>http://www.compassionandchoices.org/2011/07/06/end-of-life-care-a-portrait/#comments</comments>
		<pubDate>Wed, 06 Jul 2011 23:04:38 +0000</pubDate>
		<dc:creator>Sonja</dc:creator>
				<category><![CDATA[All News]]></category>
		<category><![CDATA[cancer]]></category>
		<category><![CDATA[Consider the Conversation]]></category>
		<category><![CDATA[Hospice]]></category>
		<category><![CDATA[Michael Bernhagen]]></category>
		<category><![CDATA[Terry Kaldhusdal]]></category>
		<category><![CDATA[Wisconsin]]></category>

		<guid isPermaLink="false">http://blog.compassionandchoices.org/?p=1530</guid>
		<description><![CDATA[by Paula Spahn July 5, 2011 The New Old Age Coming soon to a public television station near you: “Consider the Conversation: A Documentary on a Taboo Subject.” Two friends and amateur filmmakers in rural southern Wisconsin put together this hourlong look at the way Americans think about, or try not to think about, what<span style="white-space:nowrap;">... <a href="http://www.compassionandchoices.org/2011/07/06/end-of-life-care-a-portrait/" class="bn">more</a></span>]]></description>
			<content:encoded><![CDATA[<p>by Paula Spahn<br />
July 5, 2011<br />
<a href="http://newoldage.blogs.nytimes.com/2011/07/05/end-of-life-care-a-portrait/">The New Old Age</a></p>
<p>Coming soon to a public television station near you: “Consider the Conversation: A Documentary on a Taboo Subject.”</p>
<p>Two friends and amateur filmmakers in rural southern Wisconsin put  together this hourlong look at the way Americans think about, or try not  to think about, what we’ve euphemistically come to call end-of-life  questions.</p>
<p>Michael Bernhagen became a hospice worker after his mother died at  age 81 of advanced vascular dementia without any health care  professional ever mentioning the word “hospice” to his family.  He  conducted the film’s 40-odd interviews with chaplains and ministers,  doctors, nurses, authors, researchers, patients and passers-by on New  York City streets.  Terry Kaldhusdal, a fourth-grade teacher whose  brother died of pancreatic cancer at 53, was the guy behind the camera.</p>
<p>“Without our personal losses, this project probably wouldn’t have happened,” Mr. Bernhagen told me in an interview.</p>
<p>They spent a solid unpaid year — nights, weekends, holidays —  shooting on a shoestring budget of $43,000.  About 60 people made small  contributions because they believed in the project or saw it as a way to  memorialize loved ones; a handful of larger donors wrote checks for a  few thousand dollars.</p>
<p>Accordingly, the film relies frequently on stock photos (soaring  hawks, flickering candles) and soaring soprano voices.  “We didn’t want  to scare people. We wanted to inspire them to think, to talk and to  act,” Mr. Bernhagen said.  But while it may not be high art, “Consider  the Conversation” provides moving narratives and important perspectives.</p>
<p>And its two producers, who initially had no idea how to place their  work on public television but knew they wanted it to be viewable at no  cost, can chalk up some successes.  Their labor of love aired on West  Virginia public television stations on July 2; it will run on New  Hampshire Public Television on July 7 and 8. By August, it will have  been shown on public television stations in central Michigan, Colorado,  Indiana and New Mexico, and in Chicago and San Francisco.</p>
<p>For an updated screening schedule and more information, go to the filmmakers’ Web site, <a href="http://www.considertheconversation.org/">ConsidertheConversation.org</a>.</p>
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