End-of-Life Choice, Palliative Care and Counseling

Son of Evicted Elderly Couple, Patients’ Rights Group Launch Campaign to Protect End-of-Life Rightsby Sonja

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DENVER, CO – Compassion & Choices today launched a national campaign to publicize legal options for peaceful dying. “Peace at Life’s End. Anywhere” aims to inform the public, the media and healthcare providers—especially assisted-living facilities—of end-of-life choices available in every state. The campaign was prompted by the eviction of an elderly New Mexico couple from their assisted-living facility for exercising their right to stop eating and drinking. Their son, Neil Rudolph, of Alamosa, Colorado, will co-chair the campaign. He begins a national speaking tour on Thursday in Pueblo and Colorado Springs to highlight Armond & Dorothy Rudolph people’s legal options for achieving peace at life’s end, wherever they live.

“No one must suffer needlessly at life’s end,” said Compassion & Choices President Barbara Coombs Lee. “Most Americans want to die peacefully, at home, without unbearable pain and suffering. Yet all across our nation every day, every week, Americans needlessly suffer bad deaths. Options for peaceful dying exist  in every state.

Most Americans don’t know they have the right to exercise these options. Unfortunately, some may try to obstruct the exercise of those rights, so advance planning is important. Today, we are launching a national education campaign to inform Americans of choices for a peaceful death, wherever they live.”

In 2003, the New England Journal of Medicine published the results of a survey of hospice nurses. Reports from nurses who had cared for patients who deliberately hastened their imminent death by voluntarily stopping eating and drinking (VSED) indicate such patients usually die a “good” death within two weeks after forgoing food and fluids.

“When the quality of my mom and dad’s lives started to deteriorate due to their extremely advanced age,” Neil Rudolph told a Denver news conference, “they decided they wanted to control their deaths and die peacefully at home. They discussed their views with my sister and me, and with their attorney. We called Compassion & Choices and spoke to a counselor. My parents decided to voluntarily stop eating and drinking.

“They met resistance from their assisted-living facility and had to move to a new home,” said Neil. “The Village at Alameda failed to respect my parents’ autonomy, imposing tremendous stress upon them when they should have been supported, not thwarted. The Village is not unlike thousands of assisted-living facilities in the country.

“Nearly one million Americans live in these facilities, yet most don’t know how their end-of-life rights could be infringed upon as my parents’ were. Their eviction shocked me. I think it’s inhuman for mentally competent adults to be overruled at the end of their lives by an assisted-living facility administrator, or by anyone else. My parents had every right to stop eating and drinking. The mistreatment of my parents should not be repeated. That’s why I’m working with Compassion & Choices to increase awareness of legal end-of-
life options, especially VSED, and to make it respected and honored across the country. I hope my parents’ experience can be the platform that improves end-of-life choice for others.”

Applicants to assisted-living facilities should review the facility’s offered contract carefully and negotiate clarity on any points regarding end-of-life decisions they may consider. Compassion & Choices’ Web site hosts a printable contract rider for those entering assisted-living facilities to help ensure their end-of-life choices are respected.

Even in states without an explicit legal framework, no one must suffer needlessly at life’s end. Compassion & Choices’ EOLC Program team stands ready to help all terminally ill and mentally competent patients—as well as those who just want to plan ahead—understand their options at life’s end, how to access comfort care and facilitate a peaceful death. To learn more, please contact Compassion & Choices’ End-of-Life Consultation Program at 1.800.247.7421.

Compassion & Choices also announced they will offer advocacy and legal assistance to help any individual encountering obstacles in their rational, well-considered plan to stop eating and drinking to achieve a peaceful death. Further, they will defend any healthcare provider facing sanction due to their medical and palliative support for a patient making a rational, well-considered decision to stop eating and drinking to achieve a peaceful death.

For more information please visit http://www.CompassionAndChoices.org/VSED.