End-of-Life Choice, Palliative Care and Counseling

‘Allowing’ vs.’Do Not’: Language Makes A Huge Difference in End-of-Life Decisionsby Jay

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By Rev. Dr. Martha R. Jacobs
Huffington Post
July 6, 2012

This past week I had to do something that I hoped I would never have to do. I had to sign a do not resuscitate order (DNR) for my mother. When the doctor told me on the phone that we had reached a point where it would not be helpful for my mother to be resuscitated, I agreed with him. When the DNR form came through the fax machine however, I found myself resisting signing it. Why? I know it is what my mother would want — not to be resuscitated when her body was naturally shutting down. And yet, signing something that is titled “Do Not” flies in the face of that. My mother’s body is naturally aging and her organs are “getting tired.” Her kidneys are beginning to shut down. Her body is beginning its “natural” process of shutting down. So, why am I signing something that says not to do something?

I am a professional chaplain and for the past 20 or so years I have been helping families make this very same decision. I have stood with them when the doctor has told them that their loved one’s body is shutting down and resuscitating them would cause more harm than good. I have held them when they have cried and prayed with them as they made their decision. At those times, I wondered if I would have the strength they had if I ever had to face this decision. Would I be able to sign something that says “Do Not” do something for or to my loved one? Well, as I read through the DNR form for about the 10th time, I found myself changing the language in my own mind to “Allowing Natural Death,” a term I learned several years ago. It was only after changing it in my mind that I was able to sign and fax it back to the doctor’s office and feel at peace with that decision.

Language is very important to us. We define who we are by the language we use. In Texas, they use “Allow Natural Death” (AND). From what I understand from my chaplain colleagues, other hospitals and long-term care facilities around the country are having conversations about changing the way that they approach families concerning how their loved ones are to be treated as they near the end of their life. Lee Memorial’s HealthPark Medical Center, in Fort Myers, Fla., is one of the hospitals that is using an AND approach. And there are others outside of Texas that are moving in the same direction. Since I signed that form, I am all the more convinced of the need to change the form to “Allow Natural Death.”

I have been fantasizing about a way to approach the N.Y. State Legislature about this. It feels like too large a project to undertake, especially since it took more than 18 years for the N.Y. State Legislature to pass a law that most other states already have — a surrogate decision-maker law. So, for now, I will have to help families figure out how, for themselves, they can sign a “do not” form while “allowing” the body’s natural process to move forward.

I want my mother to die with dignity — dignity as she would define it. And I know that she would define it as dying “naturally” — not with people pounding on her chest and trying to re-start her heart, or intubating her so that a respirator might force air into her lungs and re-start her organs that had already begun to naturally shut down. This doesn’t mean that I am not already beginning to grieve her death; I am deeply sad that she is dying. But I am also prepared to give her the greatest gift I can give her by abiding by her wishes: that she die with the same dignity with which she lived for her 85 years here on earth.