Compassion & Choices is making waves in the federal space. We want policymakers to know that we are serious about expanding care and increasing options at the end of life. We are often making your voice heard at briefings on the Hill, conferences and seminars. Here are some notable presentations:
During a webinar for the American Society of Aging, Chief Program Officer Kim Callinan discussed how people are increasingly equating medical aid in dying with peace of mind and control of one’s end of life. She described the growing consumer movement demanding improvements to end-of-life care and how consumer demand for medical aid in dying is changing the delivery of health care in states where it has been legalized. These states, Kim Callinan said, now experience an emerging synergy between hospice and palliative care and medical aid in dying.
Chief Program Officer Kim Callinan joined Dan Diaz, Brittany Maynard’s husband, at the Raben Group’s Policy Breakfast. They discussed how Brittany’s story transformed the end-of-life care movement, how her legacy continues to drive activity, and where the movement is going with the victories in Colorado and DC.
At the Consumer Voice Conference, Chief Program Officer Kim Callinan, National Director of Social Marketing Kim Taccini, and Federal Affairs Director Mark Dann gave a presentation on how patients are being empowered by having more control over their end-of-life care and how those ideas are being utilized by the Truth in Treatment Campaign and the Federal Affairs program.
National Medical Director, Dr. David Grube gives a presentation on best selling author Atul Gawande’s book Being Mortal. First he provides a brief biography of Gawande, from his political career to his publications. Then, he discusses the major themes of the book and gives brief summaries of each chapter. Finally, Dr. Grube uses Being Mortal to discuss his take-aways from the book and his own experience in the medical field.
National Quality Partners Identifying “Vital Signs” of Person-Centered Advanced Illness Care
June 2016, Washington, D.C.
Federal Affairs Director Mark Dann facilitated a NQF breakout group on Physical Needs & Symptoms that people have who face an advanced illness. The group reviewed progress on how physical needs & symptoms are taken into consideration with an advanced illness; how they can be incorporated into person-centered care, identify key aspects of the barriers to achieving them and Identify successes and best practices to catalyze transformational change in advanced illness. These recommendations are helping to shape the NQF report on advanced illness care and direction of NQF quality measures.
Federal Affairs Director Mark Dann was chosen to represent Compassion & Choices at the PCORI Stakeholder Workshop. Mark participated in the congress and gave his opinions on improving patient centered care to the select group of participants.
National Alliance for Caregiving Membership Call
Federal Affairs Director Mark Dann and UMT Executive Director Brian Lindberg led a call for the National Alliance for Caregiving to discuss the Federal Agenda and the UMT campaign. There were over 40 participants representing organizations and government on the call.
Compassion & Choices’ Chief Program Officer Kim Callinan and Pam Edgar, End-of-Life Care Manager discuss improving care in long-term care facilities.This presentation includes an overview of current research surrounding end-of-life care, caregiving, advance directives, and unwanted medical treatment. It provides tools and information about end-of-life care, including a “know your rights” guide, suggestions on discussing your care goals, documenting your wishes, and understanding your choices.