Alzheimer’s Association and Compassion & Choices form partnership to improve end-of-life care for those living with dementia

National organizations will also cooperate on addressing inequities in care, support, and information for historically underserved communities 

The Alzheimer’s Association, the nation’s leading voluntary health organization in Alzheimer's care, support and research, and Compassion & Choices, the nation’s oldest, largest and most active nonprofit organization dedicated to end-of-life care options, today announced a new partnership to improve end-of-life care for those living with dementia.

The two organizations will collaborate with the goal of engaging communities across the U.S. to raise awareness of the prevalence of Alzheimer’s and other forms of dementia, connect people living with dementia and their loved ones to resources and support, and sharing the steps everyone can take in the event of an early-stage dementia diagnosis to ensure the health care they receive is aligned with their personal health goals, values and priorities.

With 1 in 9 people over 65 living with Alzheimer’s dementia, and with 1 in 3 seniors dying with Alzheimer’s  or another dementia, the partnership will also focus on reaching populations who haven’t traditionally had access to a supportive, culturally competent and engaged health care system, especially in the Black, Latino, Asian American Native Hawaiian Pacific Islander (AANHPI) and LGBTQ communities.

The organizations will collaborate on national webinars, local community events, efforts to include underrepresented communities in research trials and surveys, sharing data, organizing conferences and more.

“Dementia touches nearly every American, whether it’s an individual or their loved one living with the diagnosis,” said Kim Callinan, President and CEO of Compassion & Choices. “Compassion & Choices is committed to transforming the way people live and die with dementia by connecting them with the information, tools and resources they need to take control of their care and claim their voice before they are unable to speak for themselves. We are so excited to begin this partnership with the Alzheimer’s Association to enable both organizations to reach even more people, especially in historically marginalized communities.”

"Underrepresented and underserved communities are disproportionately impacted by Alzheimer’s and dementia, and yet are less likely to be diagnosed; less likely to be recruited to participate in research; and less likely to have access to care and support services," said Carl V. Hill, Ph.D., M.P.H., Chief Diversity, Equity and Inclusion Officer at the Alzheimer's Association. "We are leading the way by developing strategic partnerships with trusted national and local organizations to create a pathway to greater health equity. We are excited to collaborate with Compassion & Choices to expand our reach, connecting families affected by Alzheimer’s and other dementia to disease information, education programs and access to care and support services."

Compassion & Choices is working to transform the way people live and die with dementia by helping them assert their care preferences early in their dementia journey, to choose what health care people want to receive and which care they may forgo when their dementia reaches an advanced stage.

Compassion & Choices free Dementia Values and Priorities Tool helps individuals identify their personal values and care wishes, provide clear care instructions to their loved ones and take the burden off of others to make difficult decisions when the person with dementia can no longer make those decisions themselves. The tool can even help create a dementia addendum to an advanced health care directive. 

Compassion & Choices Dementia Decoder is another free tool that empowers people with a dementia diagnosis and their caregivers by providing them with a list of questions they can ask their clinician in order to ensure the treatment they receive is aligned with their goals.

About The Alzheimer’s Association 

The Alzheimer’s Association is a worldwide voluntary health organization dedicated to Alzheimer’s care, support and research. Our mission is to lead the way to end Alzheimer's and all other dementia — by accelerating global research, driving risk reduction and early detection, and maximizing quality care and support. Our vision is a world without Alzheimer's and all other dementia®. Visit alz.org or call 800.272.3900.

About Compassion & Choices

Compassion & Choices is the nation's oldest and largest nonprofit organization working to improve care and expand choice at the end of life, with 450,000 supporters nationwide. More information is available at: www.CompassionandChoices.org


 

Alzheimer’s Association: Yarissa Reyes, 312-981-0274, [email protected] 

Compassion & Choices: Michael Cavaiola, 480-622-4427, [email protected]