Landmark Cancer Study Reveals Problems with Health Care SystemLeave a Comment
A landmark report illustrating the many physical, emotional, financial, practical and informational needs cancer patients experience during and after clinical treatment was released Wednesday by CancerCare, a national nonprofit organization that provides free psychosocial support, education and financial assistance to anyone affected by cancer.
The 2016 Patient Access and Engagement Report reflects the perspectives of more than 3,000 patients diverse in ethnicity, income, education, geography, age, insurance, cancer type and treatment stage regarding their understanding of their diagnosis and access to care, participation in treatment planning, communication and engagement with providers, insurance and financial issues, the impact of cancer on quality of life, and issues related to survivorship.
The report’s findings include:
- About one-third of respondents reported having inadequate information about the benefits, potential side effects and the goals of their treatment plan.
- Receiving a cancer diagnosis prompted significant numbers of respondents under age 45 to have end-of-life discussions with family members. However, a significant proportion of respondents ages 45 and older had not communicated their wishes on these topics to family members or friends.
- Respondents from all age groups had widespread misconceptions about palliative and hospice care.
Full survey results are available at www.cancercare.org/accessengagementreport.